tag:blogger.com,1999:blog-34940564.post4075115981923891404..comments2023-11-25T01:12:34.326+00:00Comments on Benefit Scrounging Scum: Missing Out...AgainBenefitScroungingScumhttp://www.blogger.com/profile/08939136229593231935noreply@blogger.comBlogger31125tag:blogger.com,1999:blog-34940564.post-10004928072237941082010-10-20T14:32:04.688+01:002010-10-20T14:32:04.688+01:00Wow, what an incredibly complicated system, and I ...Wow, what an incredibly complicated system, and I thought the Canadian view that disability means a person loves to do so much paperwork that they couldn't possible have a job AND do the paperwork for the meds/equipment they need - but the whole not getting that an scooter is indoor/outdoor - I mean, what do they think happens in shopping arcades, or cinemas? Do they think?<br /><br />I agree with the LIE! Because it must be getting tiring for being beaten for telling the truth - I had a GP in the UK just lie for me, or tell me that 'this is what you are saying' and then write it down - which shows how tired they are of this unrealistic aspect when they are trying to HELP people.Elizabeth McClunghttps://www.blogger.com/profile/03627373214555333537noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-10789406524148543752010-10-20T09:03:00.137+01:002010-10-20T09:03:00.137+01:00Did you know under the new ESA medical anyone who ...Did you know under the new ESA medical anyone who can control his own wheelchair(manual) will be deemed as being mobile, " as if with Legs".<br /><br />Anyone who uses an electric wheelchair will be deemed as unable to walk, anyone tell me the difference because I've no idea.Roberthttps://www.blogger.com/profile/05186557603493331701noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-5468994732391809452010-10-19T15:55:38.825+01:002010-10-19T15:55:38.825+01:00Steph: My flat is small and well laid out so to be...Steph: My flat is small and well laid out so to be honest using a wheelchair indoors would be more of a pain than it'd be worth. By the time I've dislocated in or out of the chair I could easily dislocate to wherever I'm going. If I ever live in a bigger place it'd be a good option though, thank you<br />I don't really understand this obsession w/chair services have with the whole indoor thing. Maybe the rules are just to stop us going out in public ;) XxBenefitScroungingScumhttps://www.blogger.com/profile/08939136229593231935noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-19840131851699102112010-10-18T22:28:20.672+01:002010-10-18T22:28:20.672+01:00Bendy
For what it's worth... every time I vi...Bendy<br /><br />For what it's worth... every time I visit the nursing home where my parents live, I always see at least one OAP resident propelling themselves backwards in a manual wheelchair. I've watched tiny, frail OAP's make slow but sure progress along the corridors, using their feet on the floor to gently propel themselves backwards as their arms are too frail to turn the wheels. <br /><br />While going backwards, is not ideal, it's better than not going anywhere at all.<br /><br />Would this be an option for you indoors, using your attendant wheelchair to get around your flat?<br /><br />I'm sure there must be dozens of manual wheelchairs (bought privately) but no longer needed (RIP ), lying idle in homes all over the country. As you know, they are bulky items to store so you may find someone who's delighted to offload one. It might be worth putting up an advert in your local store?stephhttp://biopsyreport.comnoreply@blogger.comtag:blogger.com,1999:blog-34940564.post-19929232959915438682010-10-18T12:28:04.739+01:002010-10-18T12:28:04.739+01:00MikeN: Gawd knows what the actual wording is...dun...MikeN: Gawd knows what the actual wording is...dunno if anyone's ever seen it! I'll look into it though..BenefitScroungingScumhttps://www.blogger.com/profile/08939136229593231935noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-12837931718511854832010-10-18T12:27:19.125+01:002010-10-18T12:27:19.125+01:00Alhi: When I first saw those illustrations I score...Alhi: When I first saw those illustrations I scored myself at about a 3 at the most. We haven't always got a great perspective on how flexibile we are. I know your feet are affected also as your podiatrist picked it up. Can you get someone who isn't a blood relative (as they may well be a bit bendy too) to have a look at the illustrations and your joints and get their opinion...or just send me some photos and I'll check for you?BenefitScroungingScumhttps://www.blogger.com/profile/08939136229593231935noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-43017793255092782762010-10-18T09:51:20.607+01:002010-10-18T09:51:20.607+01:00Checked out hypermobility.org: can touch the floor...Checked out hypermobility.org: can touch the floor the way they say (knees straight and hands flat) and bend my little fingers back, but that's it.alhihttps://www.blogger.com/profile/17874650104335249662noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-1112326517333391352010-10-18T07:24:47.618+01:002010-10-18T07:24:47.618+01:00What's the exact wording of the rules?
Using...What's the exact wording of the rules? <br /><br />Using a powered wheelchair indoors for six months could mean using it on day one and on day 183 ... no lie there. If they have poorly defined rules just make sure you reach minimum standard. If they're open to interpretation, interpret freely away :)Mike Nnoreply@blogger.comtag:blogger.com,1999:blog-34940564.post-4187714849167711462010-10-17T17:29:04.735+01:002010-10-17T17:29:04.735+01:00Hi Bendy,
I have emailed you with the info. It wo...Hi Bendy,<br /><br />I have emailed you with the info. It would be a very good idea to be able to collate all the collective experiences of obtaining a wheelchair appropriate to our needs to send to the ConDems. I'd be very willing to post my experiences on the matter.Nemoniehttps://www.blogger.com/profile/01522640021638854111noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-85380375300742862332010-10-17T16:13:16.160+01:002010-10-17T16:13:16.160+01:00Joanna: I think it's something to do with a va...Joanna: I think it's something to do with a vague sense that sometimes sticking to the truth is more important than anything else. <br />I'm not confident a power chair is the real answer to my mobility issues, I prefer the easy to wriggle in and out of scooter option, but will see how that goes ;)BenefitScroungingScumhttps://www.blogger.com/profile/08939136229593231935noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-16468564053925990732010-10-17T16:11:51.320+01:002010-10-17T16:11:51.320+01:00WackyLisa: Exactly!WackyLisa: Exactly!BenefitScroungingScumhttps://www.blogger.com/profile/08939136229593231935noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-82031575871055841622010-10-17T16:11:25.783+01:002010-10-17T16:11:25.783+01:00Trialia: Isn't it just! And totally contradict...Trialia: Isn't it just! And totally contradictory to the independence/work goddam you ethic being shoved upon us all by the politiciansBenefitScroungingScumhttps://www.blogger.com/profile/08939136229593231935noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-33846379372448115792010-10-17T16:10:38.704+01:002010-10-17T16:10:38.704+01:00Nemonie: That'd be great thanks. Where can I f...Nemonie: That'd be great thanks. Where can I find your email addy? <br />Good luck with appointment. This seems to be a common problem so perhaps we can start collating people's experiences to present to the ConDems somehow?BenefitScroungingScumhttps://www.blogger.com/profile/08939136229593231935noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-40158784263546224082010-10-17T16:09:27.506+01:002010-10-17T16:09:27.506+01:00Alhi: It may yet come to that, but I'm keeping...Alhi: It may yet come to that, but I'm keeping everything crossed BendyBus will be fixed, at least that way I can get a good idea of how suitable/practical scooter use really is xBenefitScroungingScumhttps://www.blogger.com/profile/08939136229593231935noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-78883688560118590032010-10-17T16:08:39.694+01:002010-10-17T16:08:39.694+01:00Lilwatchergirl: Thanks love! That about sums up th...Lilwatchergirl: Thanks love! That about sums up the dilemma! Apparently local MP been involved many times to no effect but am going to approach mobility trust once DLA is decided.BenefitScroungingScumhttps://www.blogger.com/profile/08939136229593231935noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-35065781853512856552010-10-17T16:07:36.271+01:002010-10-17T16:07:36.271+01:00Bluehook: Thanks for that, I'll get on to them...Bluehook: Thanks for that, I'll get on to them as soon as I hear back about DLA stuff - not got the emotional reserves until that's out of the way ;) xBenefitScroungingScumhttps://www.blogger.com/profile/08939136229593231935noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-89871574092553646512010-10-16T13:34:22.352+01:002010-10-16T13:34:22.352+01:00From Mobility Trust website:
"If you are in d...From Mobility Trust website:<br />"If you are in desperate need of a powered wheelchair or scooter and cannot obtain one through statutory sources or afford to purchase such equipment yourself, you can apply to Mobility Trust.<br /><br />Please write a letter explaining why you need this equipment, giving details of any disabilities you have and the cause of them.<br /><br />Address your letter to:<br /><br />Mrs Anne Munn<br />Mobility Trust<br />17b Reading Road<br />Pangbourne<br />Berkshire<br />RG8 7LR"<br /><br />Simples.bluehookhttps://www.blogger.com/profile/08255253944092898191noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-24479037381825458222010-10-16T13:28:25.689+01:002010-10-16T13:28:25.689+01:00I agree with lilwatchergirl - the Mobility Trust i...I agree with lilwatchergirl - the Mobility Trust is for people who fall through the cracks of statutory services. You match their target beneficiary very well. Get an application in, there's probably a waiting list. http://www.mobilitytrust.org.uk/bluehookhttps://www.blogger.com/profile/08255253944092898191noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-33397845069502099232010-10-16T09:28:01.788+01:002010-10-16T09:28:01.788+01:00Oh - the grounds to complain on are those of healt...Oh - the grounds to complain on are those of health and safety. Keep pushing the fact that a self-propelled chair would harm you THEREFORE you need a powerchair. The person I know who fought similar rules won on the grounds of safety.Naomi J.https://www.blogger.com/profile/10918322634249814999noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-1931061145009153382010-10-16T09:26:07.795+01:002010-10-16T09:26:07.795+01:00I know people who've fought these 'rules&#...I know people who've fought these 'rules' and won. I also know someone with EDS who was given a powerchair by the Mobility Trust. I suggest writing strong letters of complaint, copied to your MP, and seeing if you can get them to back down (sometimes they do, really). Then move on to charities. There's no reason why you wouldn't get a chair from them just because EDS isn't a 'famous' condition.Naomi J.https://www.blogger.com/profile/10918322634249814999noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-47774337009794232732010-10-15T18:46:38.779+01:002010-10-15T18:46:38.779+01:00how about another begging box appeal?how about another begging box appeal?alhihttps://www.blogger.com/profile/17874650104335249662noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-45920393904615832322010-10-15T18:44:09.354+01:002010-10-15T18:44:09.354+01:00Hey honey. At the last HMSA residential, there was...Hey honey. At the last HMSA residential, there was a lot of wheelchair envy going on. I think the majority of the bendies had gotten their ultra lightweight rigid self propelled chairs from wheelchair services. There was one girl who had a super snazzy one, which she had gotten from wheelchair services and then upgraded herself with the e-motion powered wheels, which were incredible and she said she's been able to get them for a good deal from ebay. If you email me I can give you her forum name so you can get in touch with her.<br />I'm currently waiting for my very first appointment with wheelchair services. Should be fun ;)Nemoniehttps://www.blogger.com/profile/01522640021638854111noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-58207983532698022272010-10-15T18:07:55.631+01:002010-10-15T18:07:55.631+01:00*sighs* I know exactly how you feel. Knowing the r...*sighs* I know <i>exactly</i> how you feel. Knowing the rules about powerchairs on the NHS, I may <i>never</i> be eligible to get one, since my shoulders dislocate so easily with EDS that there's just no way I can self-propel. <br /><br />I get to borrow a powerchair or a motorised scooter from Shopmobility when I'm in town, but if I'm anywhere else and I am too tired or hurting too much to go any further with my stick, I'm fucked. I wouldn't use a powerchair indoors anyway - it's much easier to navigate my flat with my walking stick! And I'll never be able to afford to get a chair <i>not</i> on the NHS, because my HRM goes towards care and utilities, as they decided only to give me LRC (when all my doctors agree that it ought to be MRC - I don't have the spoons to fight it).<br /><br />The NHS policy on chairs is nothing short of <i>stupid</i>.Trialiahttp://unfaithful-mirror.netnoreply@blogger.comtag:blogger.com,1999:blog-34940564.post-60084953730183155922010-10-15T17:48:16.668+01:002010-10-15T17:48:16.668+01:00Im with Claire but don't lie, just be economic...Im with Claire but don't lie, just be economical with the truth. If it's in your flat for six months who is to say whether you have used it to move about or not?Joanna Cakehttps://www.blogger.com/profile/15944673677004607976noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-65573872034759488082010-10-15T17:25:50.735+01:002010-10-15T17:25:50.735+01:00Lisa: Like I mentioned in the post, even if I coul...Lisa: Like I mentioned in the post, even if I could persuade him to do that, the cost difference between the voucher the NHS would prescribe and the lightweight power assisted chair I'd need is prohibitive. <br />I could try and persuade them to give me just a standard manual wheelchair but although I'm willing to dislocate using it, in reality I wouldn't be able to self propel any further than I can 'walk' so it's back to square one..BenefitScroungingScumhttps://www.blogger.com/profile/08939136229593231935noreply@blogger.com