tag:blogger.com,1999:blog-34940564.post4880050361187111433..comments2023-11-25T01:12:34.326+00:00Comments on Benefit Scrounging Scum: Don't It Make My Brown Eyes BlueBenefitScroungingScumhttp://www.blogger.com/profile/08939136229593231935noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-34940564.post-7592315805268753202008-11-04T18:10:00.000+00:002008-11-04T18:10:00.000+00:00Bendy, you know how I feel and what has happened (...Bendy, you know how I feel and what has happened (with re to even so called doctors..and the consequences) to me, so I won't go on....just suffice to say that its what we do now that counts...and some of that is NOT allowing those who are toxic to us permeate our being...<BR/><BR/>Without being trite and assuming, I think I KNOW - in a funny tangent way-<BR/><BR/>Love n hugs<BR/><BR/>Ms OMs Ordinaréehttps://www.blogger.com/profile/16082842531926687657noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-48380391998485261992008-11-04T17:26:00.000+00:002008-11-04T17:26:00.000+00:00Dear, Dear Bendy,I know what you're talking about ...Dear, Dear Bendy,<BR/><BR/>I know what you're talking about - not from personal experience but from the experience of my wife. As a young girl growing up she went through that whole thing of no one believing her. She has Ehlers Danlos, although hers would seem to be not quite as profound as yours.<BR/><BR/>It has gotten progressively worse over time. The thing about EDS is that things stretch - and they don't snap back. They just stay stretched. <BR/><BR/>Her older sister was diagnosed with the same condition - and THEN, and ONLY THEN, would they believe Annie. After years of complaints.<BR/><BR/>I understand you and your pain. I wish I could do for you as I have been able to do for Annie. I massage her back and ankles and knees every night - to give her ease so she can sleep. And then she gets up the next day and fights her way through to the next night - and the next massage - and the next night's sleep. One day at a time. One massage at a time. I would do for you, if I could. I feel so badly that I can't.Anonymoushttps://www.blogger.com/profile/13024392628362568010noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-39493593397171237332008-11-03T11:53:00.000+00:002008-11-03T11:53:00.000+00:00BendyI totally understand where you're coming from...Bendy<BR/><BR/>I totally understand where you're coming from here.<BR/><BR/>As you know, one of the traits of EDS is that people with the syndrome usually 'look' perfectly well. Therefore as a condition, it's very often misunderstood. <BR/><BR/>I look extremely healthy so only those who know me well, understand the constant struggle and pain I experience in everyday life. Unfortunately, people will always judge 'books by the cover' so while we can't change how we are perceived, we can change how we cope with how others perceive us.<BR/><BR/>I had to learn to give up ever hoping that my parents would recognise my condition. Like you, I lived for years with self-doubt as there seemed to be no explanation for my constant health problems. I kept being told I was just 'unlucky'. I was finally diagnosed with EDS at age 36 but my parents never acknowledged or showed any interest in the diagnosis. I'm sure denial plays a large part in the reaction to genetic conditions. I used to really resent this lack of acknowledgement but then I gradually came to realise that the loss was theirs, not mine.<BR/><BR/>Now, like you, I get on with my life as best I can, content in the knowledge that my condition is understood by those who need (and want) to know. I don't care what anyone else thinks.<BR/><BR/>And finally, I'm absolutely certain that adversity can either make or break you. As you well know Bendy, EDS'ers are not easily broken!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-34940564.post-26312844287629940412008-11-03T09:44:00.000+00:002008-11-03T09:44:00.000+00:00Bendy,As we get older the truth becomes more impor...Bendy,<BR/><BR/>As we get older the truth becomes more important. Thats a really great post, I am sorry it took so long, your a brave person. I have gone back through your other posts and can only think of what your going through and how you deal with it in a postive way.<BR/>Take care<BR/><BR/>NiceyNiceyhttps://www.blogger.com/profile/09140066070165636283noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-33907611652527546432008-11-03T00:02:00.000+00:002008-11-03T00:02:00.000+00:00So you are finally vindicated and you were right a...So you are finally vindicated and you were right all along.<BR/>Let me tell you my story<BR/>I had osteomyelitis when I was 12 or 13- along time ago. It took ages and a lot of pushing from my mum before my GP would send me for an x-ray.It showed an infection on the bone. I was vindicated. <BR/>I went into hospital and my shin was cut open and the infection drained. A couple of months later and I had to learn how to walk again.<BR/>It could have been so different. A week before I went into hospital my leg stopped hurting. The infection had reached the marrow. If my mother and I had not kept shouting and making a fuss I'd be dead.<BR/>Good news in my case. I'm still here, moany old git that I am.They treat this with antibiotics these days. ten or fifteen years earlier in my case and it would have been amputation.<BR/><BR/>Sometimes your vindication may come with a death sentence. You win the battle but lose the war.<BR/><BR/>You might say "that's life" but remember BG- this is life. This is your life. You show us all that you can appreciate the life you have. Live it. Embrace it. Enjoy it. Enjoy it all.<BR/><BR/>The truth WILL set you free.Davehttps://www.blogger.com/profile/00448711775318691029noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-54104968315334343402008-11-01T15:27:00.000+00:002008-11-01T15:27:00.000+00:00Truth always pays in the end.Truth always pays in the end.James Highamhttps://www.blogger.com/profile/14525082702330365464noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-74408575427014930172008-11-01T08:38:00.000+00:002008-11-01T08:38:00.000+00:00We learn very quickly that the so called experts a...We learn very quickly that the so called experts are not expert.Casdokhttps://www.blogger.com/profile/03497897393162856190noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-52794858135685724722008-11-01T06:53:00.000+00:002008-11-01T06:53:00.000+00:00At least you DO know the truth now...you weren't g...At least you DO know the truth now...you weren't going insane, although it took a long time to make others realise this. xxxTrixiehttps://www.blogger.com/profile/18444757419149336359noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-13122393566388141022008-11-01T02:01:00.000+00:002008-11-01T02:01:00.000+00:00What an interesting and heart felt post. I can se...What an interesting and heart felt post. I can see my daughter struggling with some of this as well.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-34940564.post-61294100021638981972008-11-01T01:43:00.000+00:002008-11-01T01:43:00.000+00:00I can't believe you went through all this it is so...I can't believe you went through all this it is so unfair.<BR/><BR/>You are so brave Bendy and I admire you so much for not giving up when it would have been so easy to do.<BR/><BR/>(((hugs))) xxDark Sidehttps://www.blogger.com/profile/01041020755058214988noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-76859756183124365092008-10-31T23:27:00.000+00:002008-10-31T23:27:00.000+00:00My bride of 39 years can not tell even a white lie...My bride of 39 years can not tell even a white lie. Sometimes she is brutally honest. It can cause hard feelings.Sliphttps://www.blogger.com/profile/12941551680319211810noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-63436963109316485122008-10-31T20:58:00.000+00:002008-10-31T20:58:00.000+00:00oh Bendy, this is just so sad. If we're not allowe...oh Bendy, this is just so sad. If we're not allowed our own truth how can we stay intact. You are a remarkable woman having come through so much. And i know cause I've met you.<BR/>Self belief is so core to ourselves, you'll just have to keep working on it till one day you actually can let go of other people's shitty messages.<BR/>I know, it's how i got here!<BR/>hugs xFire Byrdhttps://www.blogger.com/profile/05477692359400671374noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-61379383933027785512008-10-31T20:13:00.000+00:002008-10-31T20:13:00.000+00:00I'm very sorry this went on for so long for you. ...I'm very sorry this went on for so long for you. As a person who is very, very literal and sees things very black or white as truth or not truth, I have a hard time when people lie to me either on purpose or not, and have been called a liar more times than I care to count by people who don't understand just how literal I am. <BR/><BR/>While it's not the same, I understand the doubt that starts to happen, questioning your own thinking/feeling/etc, questioning reality and if what you think is happening is real or just a figment of your imagination like they keep trying to tell you it is.<BR/><BR/>Glad that you have people who don't doubt you now in your life. And hope that that is at least some help over time.Katrinhttps://www.blogger.com/profile/02764862508335450379noreply@blogger.com