tag:blogger.com,1999:blog-34940564.post5836259899884244074..comments2023-11-25T01:12:34.326+00:00Comments on Benefit Scrounging Scum: How common is rare?BenefitScroungingScumhttp://www.blogger.com/profile/08939136229593231935noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-34940564.post-28393539839460162762010-04-01T12:24:41.923+01:002010-04-01T12:24:41.923+01:00One thing that comes up in the US at least is the ...One thing that comes up in the US at least is the thought that if you're not extremely bendy or don't hit the "right" joints for Beighton or Brighton scales, there's no problem. I got told as a teenager that I had "minor joint laxity" that would never cause me any problems. Same doctor (pediatric rheumatologist) missed that I was essentially describing hip subluxations.<br /><br />Since I've seen a physio who is shocked by how bendy I am and the fact that no doctor has picked up on it and that it's at least part of my problems. Took this info to other doctors who tell me once again that I'm not bendy enough to be having problems. <br /><br />Luckily for me I have supportive family and friends and pretty much all my friends with EDS think it's probably what I have so we're working on getting me in with one of the top US specialists for it, but the number of medical-types who've said "it shouldn't cause you any problems" is getting to be ridiculous.Penelopehttps://www.blogger.com/profile/06266694020145632041noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-71678497858337480922010-03-30T22:02:40.636+01:002010-03-30T22:02:40.636+01:00I think bendy people can scent out other one's...I think bendy people can scent out other one's/ The only thing I would say about the self testing criteria is that Professor G said to me that whilst it is good many people go undiagnosed or sort of underdiagnosed because they may score very low on the actual scale and may have other areas of hypermobility not on the scale leaving them still in pain and sort of underdiagnosed as a result. Its his hope that all rheumatologists are familiar with the scale and its interpretation. My worry is that often people with mechanical pain are sent off to orthapods who seem not to be so 'understanding'. Physio in the wrong hands can be damaging so anyone diagnosed should make sure that the physio is willing to learn!! <br /><br />Brilliant that you are able to help her and hope her pain is taken seriously and she is helped in all the right ways!<br /><br />xoxoxoxoAcheloishttps://www.blogger.com/profile/13489197508242501952noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-66027975010223159422010-03-30T21:19:24.211+01:002010-03-30T21:19:24.211+01:00That's absolutely brilliant that you've be...That's absolutely brilliant that you've been able to help her. GP's are just that General practitioners and don't know everything. It's the research you've done that's helped her!Vihttps://www.blogger.com/profile/03765245225983839101noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-68549796854965427502010-03-30T21:10:57.468+01:002010-03-30T21:10:57.468+01:00I hope that your neighbour gets a diagnosis proper...I hope that your neighbour gets a diagnosis properly once she has seen the Rheumy. Living with joint hypermobility and not being taken seriously isn't fun.<br /><br />It's funny you mentioned the hands thing too...although I had given up hoping to ever be taken seriously and actually get a diagnosis of what was wrong with me, I allowed my new GP to send me to see someone and that wonderful lady spotted my hypermobility within 4 minutes of talking to her, subsequent chats/exams etc proved her point as she told me I have EDS. I've often wondered how she knew, as at that time I was in so much pain I could hardly walk at all, but of course she watched my hands, and mine really DO flap about all over the place like demented butterflies. You clever thing you :o)Lankylonglegsnoreply@blogger.comtag:blogger.com,1999:blog-34940564.post-15803198731926900102010-03-30T17:35:25.939+01:002010-03-30T17:35:25.939+01:00I'm glad you were able to help your neighbour....I'm glad you were able to help your neighbour.<br /><br />I just had a customer at work pray with me for healing as I was on my cigarette break.BubbleGirlhttps://www.blogger.com/profile/00932935674980101062noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-61784741018117148472010-03-30T17:30:28.579+01:002010-03-30T17:30:28.579+01:00A very interesting post. And it's so good that...A very interesting post. And it's so good that you have been able to help your neighbour get the referral that she so obviously needs.madsadgirlhttps://www.blogger.com/profile/02406362172304786268noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-86149932340954070022010-03-30T16:58:43.505+01:002010-03-30T16:58:43.505+01:00Dear Bendy,
Thanks for the information.
Since I ...Dear Bendy,<br /><br />Thanks for the information.<br /><br />Since I have been reading your blog I have had 1 new case of ED and one of milder hypermobility.<br /><br />I think you'll find most GPs sympathetic, but it is not always Number 1 on the list of diagnoses, so a steer in this direction is very helpful.<br /><br />JD.Jobbing Doctorhttps://www.blogger.com/profile/15556376882759955757noreply@blogger.com