tag:blogger.com,1999:blog-34940564.comments2023-11-25T01:12:34.326+00:00Benefit Scrounging ScumBenefitScroungingScumhttp://www.blogger.com/profile/08939136229593231935noreply@blogger.comBlogger6267125tag:blogger.com,1999:blog-34940564.post-25059495933116231792015-06-07T09:04:26.777+01:002015-06-07T09:04:26.777+01:00Dv doesn't cause hyper mobility though and cer...Dv doesn't cause hyper mobility though and certain eds types can also be diagnosed by biopsy and blood test It's crap having a syndrome and then being asked if your battered or if you batter your kids Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-34940564.post-65774294303994635302015-04-01T11:41:35.394+01:002015-04-01T11:41:35.394+01:00Thank you for this post. It's wonderful. David...Thank you for this post. It's wonderful. David Cameron on the other hand is... Not. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-34940564.post-49930951837620713442015-03-29T15:52:13.217+01:002015-03-29T15:52:13.217+01:00Hope you get your dla full rate pauly_cheers dott ...Hope you get your dla full rate pauly_cheers dott tuffs @ bobby tuffs @ oldmum,BarryAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-34940564.post-37619392743513945722015-03-24T22:36:17.354+00:002015-03-24T22:36:17.354+00:00Asking for permitted work form does NOT stop your ...Asking for permitted work form does NOT stop your esa ! I know I've done it.I am in the support group but wanted to try to work,I've been doing permitted work for 9 months now. All played by the job centre. There are rules,the work must be for less than 16 hours on average and you must not earn more than 104 per week.benefits not affected.if your work falls within these boundaries you will be better off :-)nenennoreply@blogger.comtag:blogger.com,1999:blog-34940564.post-16785294364613308022015-02-05T20:39:31.715+00:002015-02-05T20:39:31.715+00:00To my shame, I did not know of Lucy Glennon until ...To my shame, I did not know of Lucy Glennon until now, her tragic, and untimely death. It is very, very sad, and the awful fact that she spent her last years with so much stress and uncertainty in her life because of the cruelty of Cameron's policies, is a real indictment on this government. So cruel.<br /><br />The photo above of the charity reception, with Lucy being totally ignored by smug Cameron, is just shocking.<br /><br />R.I.P Lucy Glennon - a brave woman and a great loss to humankind.Findlownoreply@blogger.comtag:blogger.com,1999:blog-34940564.post-30191217389115423762015-02-04T19:38:29.375+00:002015-02-04T19:38:29.375+00:00This is an incredible story, what an amazing woman...This is an incredible story, what an amazing woman. And, I agree with the above comment, it's a disgusting situation. Beyond disgusting, actually.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-34940564.post-68720205231779778592015-02-03T15:37:06.544+00:002015-02-03T15:37:06.544+00:00Beautiful tribute and a disgusting situation :(
Sl...Beautiful tribute and a disgusting situation :(<br />Sleep soundly, Lucy xxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-34940564.post-25445722046983170202015-02-02T11:08:11.138+00:002015-02-02T11:08:11.138+00:00I'm linking at SD immediately.
Have you submi...I'm linking at SD immediately.<br /><br />Have you submitted this beautiful tribute to CIF?Sarah Ismailhttp://www.samedifference1.comnoreply@blogger.comtag:blogger.com,1999:blog-34940564.post-91418691091769516332015-01-29T17:11:52.914+00:002015-01-29T17:11:52.914+00:00Be kind to yourself. You were taken on and employ...Be kind to yourself. You were taken on and employed with the knowledge that you had a debilitating illness.<br />Use the downtime to let your body and mind rest. I recently read that people have their best ideas and are most creative when they give themselves time to day-dream.<br />Celebrate what you have done. We are often our own harshest critics. We expect much more from ourselves than is humanly possible. I've seen you popping up in all sorts of places doing valuable and interesting work. You provide a unique perspective and are who you are not just despite of your condition but because of it.<br />You are not a robot!<br />Look forward to hearing from you again soon. <br />RoseannTantalushttps://www.blogger.com/profile/12994444496973588922noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-56647947219170574762015-01-29T17:06:28.679+00:002015-01-29T17:06:28.679+00:00Go easy on yourself Khaliya. Your employer knew a...Go easy on yourself Khaliya. Your employer knew about your condition when they employed you. Don't feel bad about what you haven't done but feel good about all that you have got done. I see you popping up in lots of places and you provide a unique and incisive take on the situations and issues you tackle. <br />Sometimes we are our own most damning critics.<br />I recently read that day dreaming and having time to drift is when people get their best ideas and are most creative. <br />So treat the down time as an opportunity to let your body and brain simmer and fertilise itself. You may surprise yourself with how productive you are once you have a well deserved rest.<br />Hope you feel better soon.<br />RoseannTantalushttps://www.blogger.com/profile/12994444496973588922noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-8481929349159500642015-01-22T21:24:05.901+00:002015-01-22T21:24:05.901+00:00absolutely! stress IS the killer,and most of us ar...absolutely! stress IS the killer,and most of us are under unbearable - yes, UNBEARABLE stress.<br />:) 100 lines, ha ha, that might get it through.<br />who is listening, though? :(Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-34940564.post-56439358428479957192015-01-19T23:25:47.112+00:002015-01-19T23:25:47.112+00:00Penny has the worst attitude and personality. She ...Penny has the worst attitude and personality. She doesn't want to be judged but judges others herself? The problem with the date was her not the guy, she is dull, rude and ignorant. She will never find anybody unless she looks at herself........Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-34940564.post-59968554038964945372015-01-19T20:48:22.803+00:002015-01-19T20:48:22.803+00:00errrr yes B1 and B12 are excellent, as are others,...errrr yes B1 and B12 are excellent, as are others, as I know as a health nut. However, STRESS is the killer, and most of us are under unbearable - yes, UNBEARABLE stress.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-34940564.post-20684832202676646492015-01-14T13:17:12.327+00:002015-01-14T13:17:12.327+00:00Just a thought but maybe you need your doctor to t...Just a thought but maybe you need your doctor to take some blood and check things like kidney and thyroid function, B1 and B12 and anything else that a real doctor would know might be causing some of your symptoms.bluehookhttps://www.blogger.com/profile/08255253944092898191noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-20349205516666434972015-01-14T10:41:35.986+00:002015-01-14T10:41:35.986+00:00Something that was said to me years ago... No empl...Something that was said to me years ago... No employer is ever grateful to an employee for destroying their health in order to do their job. No one will thank you for breaking yourself for them.<br /><br />If you can take sick leave or annual leave for a few weeks and just *splat* on the couch/bed to recover spoons, then try it. See how things go after that. If things don't improve, then you've given it a good shot. <br /><br />You've proven, for those of us who always said it, work is not necessarily good for you. Where this idea came from... it's fucking stupid. They look at us, with our fucked up bodies and fucked up minds, most of us in so much pain that life is a blur of "when can I take more drugs?" and "Oh gods, can I go to bed now?" And they say "Oh, if you got a job you'd feel so much better!" or "maybe you should try going to the gym!" Oh, just fuck right off with that crap.<br /><br />How about looking at us and respecting that perhaps, just perhaps, we might actually know what the fuck we can and can't do after years of pushing ourselves to past the point of breaking just to try to live a "normal" life.<br /><br />Where was I? Oh yes... I'm sure you know this but I'll say it again anyway... take it easy; rest; try to recover; take some time off if you can; if you are still breaking, if your spine & central nervous system are still fucking you about, then regretfully it may be time to say "I did my best but work is not good for me, even with lots of help." I hope you are able to return to it, for your sake, I know you enjoy it and I remember how happy you were at the prspect of the job. Good luck.Kaylahttps://www.blogger.com/profile/07311646739768994560noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-49366019187692138932015-01-14T04:41:27.288+00:002015-01-14T04:41:27.288+00:00Thinking of you too. You're one of the reasons...Thinking of you too. You're one of the reasons why I'm still able to work almost full time - your blog helped me to articulate my issues to doctors, and I managed to get the support I needed before it was too late. I'm really sorry that you have it so tough. Your work, paid and unpaid, has already achieved so much that if you retired from paid work and blogging tomorrow, your 'human wellbeing footprint' would be bigger than most other people's. I hope you find the time it takes to get some real rest.misspiggynoreply@blogger.comtag:blogger.com,1999:blog-34940564.post-28440079817150747382015-01-13T13:32:07.139+00:002015-01-13T13:32:07.139+00:00Yes, the "perfect job" is the one which ...Yes, the "perfect job" is the one which somehow can afford you to be inactive for random indefinite periods. I so feel for you having this bad patch, with all its fear and uncertainty, stretch on through the winter. In a way, life is harder when your condition gives you better periods, when possibilities do open up, and then it's scarier and more infuriating than ever when you have a slump. It's also immensely difficult to express that there are better and worse periods when your better periods look nothing like healthy.<br /><br />There's absolutely no doubt that fulfilling work can be great for people. But it's like exercise - no argument that exercise is really really good for people's bodies, brains and well-being, but not everyone can do it at all, not everyone can do it all the time and not everyone can do it without avoiding dreadful consequences. <br /><br />Thinking of you, K. Hope you're keeping warm and as comfortable as possible and that things improve really soon. The Goldfishhttps://www.blogger.com/profile/15213378454070776331noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-61634898776040397822015-01-13T12:48:08.148+00:002015-01-13T12:48:08.148+00:00For vastly different reasons we seem to have a gre...For vastly different reasons we seem to have a great many similar health problems.<br /><br />Two things I know for sure, having been disabled all my life, and seriously disabled (as in unable to work, shower, bathe, etc) for 30 years. 1. work can be advantageous psychologically. 2.But physically, work can kill you. It almost killed me.<br /><br />These days, even my own blog is too much for me to cope with most of the time. Gone are the days when I could churn out half a dozen posts a day - now I'm lucky to manage 3 or 4 a week, and short ones at that.<br /><br />Listen to your body. Advice I should have taken much earlier.Ron Graveshttp://ronsrants.wordpress.com/noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-60975273874644524612015-01-13T11:56:09.105+00:002015-01-13T11:56:09.105+00:00Have you heard of sick leave? I have a work ethic ...Have you heard of sick leave? I have a work ethic that says I must not take sick leave unless I'm flat on my back in hospital. And I was last October so was forced to take time off, and not just because there's no wi-fi or 3G in that particular hospital, but because I could not sit on a chair without agonising pain from my self-inflicted bulging disc. I had to take a few more weeks after I self discharged for reasons I won't go into, because of the sitting up problem. And I thought I'd start back after the festive season which wasn't very festive as I spent it lying flat on my face on a deconstructed children's bunk bed, watching Netflix through the bars on the end of the bed. But I still can't handle it and now I'm on a guilt trip and taking it out of my annual leave allocation. So, the point of all that bla... is this: go to your doctor and get a 'fit not' for a month and clean up the vomit, have a shower and sleep as much as you need. If at the end of the month you still feel as bad as you do now, rethink, but I'm betting you'll feel at least somewhat better. Give it a go because, as we both know, jobs like this don't come along that often, I know how fortunate I am to have a job that gives me similiar flexibility and a really understanding employer. If I have to give this up I know I'd succumb to depression and then... well, who knows.bluehookhttps://www.blogger.com/profile/08255253944092898191noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-30053824849728087692015-01-13T11:49:26.271+00:002015-01-13T11:49:26.271+00:00I will laugh my balls off if you get past as fit f...I will laugh my balls off if you get past as fit for work by Maximus at any time in the futureClivegsdhttp://ukcarers.netnoreply@blogger.comtag:blogger.com,1999:blog-34940564.post-78726237105101325912015-01-13T10:33:11.350+00:002015-01-13T10:33:11.350+00:00I am so sad to hear thus, though I have been aware...I am so sad to hear thus, though I have been aware of the struggle you were having. I agree with you that the pressure of even a (for most people) small amount of work can be too much. You need to use your energy to keep yourself well and keep your relationships and life going. <br />I know, also from personal experience, how hard it is to judge how much we can do. A couple of good days and all sorts of things seem possible, only to fall to pieces the next day. So frustrating.<br />When I had to go off sick from work as the mental and physical stress of the job was too much, I was taken aback to receive a letter from HR extolling the virtues of work and telling me how good it was for my health!<br />You shouldn't feel bad if you have to give up this job. You havereally given it your best and a long time of feeling under par. You still have a great contribution to make as a campaigner. LoveclizLiz@jesslinworldhttps://www.blogger.com/profile/16259563700912124895noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-12295854619494036602014-12-09T02:15:42.100+00:002014-12-09T02:15:42.100+00:00This comment has been removed by the author.Anonymoushttps://www.blogger.com/profile/03671441587107102034noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-65059107414637653922014-12-05T15:33:23.237+00:002014-12-05T15:33:23.237+00:00I found your blog/tweets because I'm looking i...I found your blog/tweets because I'm looking into coming off ESA and onto Working Tax Credits but I want to know what will happen if I relapse and can't seem to find anything out regarding the linking period.<br /><br />If it is of any interest, as regards the permitted work, my experience is that it works fine, certainly they never stopped my ESA (Income related), the only (small) issue was that they never actually told me that I had been granted permitted work (higher level).<br /><br />Hope everything is working out for you...Anonymoushttps://www.blogger.com/profile/12245063196951708869noreply@blogger.comtag:blogger.com,1999:blog-34940564.post-6048973841601702952014-11-03T11:07:40.403+00:002014-11-03T11:07:40.403+00:00My name is Karen and I am going through exactly wh...My name is Karen and I am going through exactly what my namesake went through. When I read her story, it could have been me writing it. Like Karen I have all the diabetic related neuropathies, and I have total kidney failure, I have a haemodialysis machine at home and dialyse six days a week for several hours, yet lo and behold, the DWP (who I used to work for by the way and who finished me when I discovered my kidney failure because I was "too ill to work"), have placed me in WRAG expecting some other employer to take me on. Really? I spend the majority of my life hooked up to my machine or recovering from the treatment. I am on the transplant list, like Karen originally I was down for a kidney & pancreas but now just the kidney. I have diabetic retinopathy, involving several bouts of laser surgery to prevent total blindness, yet despite all this, I am expected to undertake work related activities. Did you know that most renal patients die from heart related illnesses, well it's no wonder given the stresses we are subjected to thanks to DWP. I will carry on fighting for people like Karen and myself, I don't intend to lie down and roll over. It's time DWP spent more time chasing the shirkers and those who rely on alcohol and drugs to get them through the day, but I suppose it's far easier to bully those of us who haven't the strength to fight back. DWP you are the scum, not those of us who are genuinely ill. You feed on the weak and the sick because you are cowards and can't deal with the scroungers. I will hate you till my dying day. RIP Karen, you didn't deserve the anguish they put you through. xxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-34940564.post-12838719054566383022014-10-28T14:01:01.110+00:002014-10-28T14:01:01.110+00:00What an utter bastard. It just shows that this shi...What an utter bastard. It just shows that this shit has been in the pipeline for a long time, well done for preserving this news item. Landless Peasantnoreply@blogger.com