May is Ehlers Danlos Syndrome awareness month
16 year old Damien Wilkins died on 27th September 2009. He had Vascular Ehlers Danlos Syndrome. Damien and his family were fully aware he had Vascular EDS, previously known as EDS type IV but most people with this life threatening condition go undiagnosed until after their deaths. Please take a moment to view the diagnostic criteria for Vascular EDS and the emergency advice from the EDNF.