It's off to pain clinic this afternoon. In about an hour which must be why I'm sat here blogging with dripping wet hair trying to have something to eat. Trying and failing, probably because I got into the bread at 7.45 am, shortly before BendyCat decided to vomit all over the bed. Whilst I was in it. I swear, if I didn't love that creature she'd be getting sold on ebay.
So, it was date no. 2 with Dr Heart last night. Ably assisted by my lovely neighbours I managed to put some kind of meal together. Actually that's a complete fabrication. I did manage to do the actual buying of food part, but the rest was entirely down to my neighbours. I did consider serving my favourite meal of oven chips, baked beans and grated cheese but felt that probably wasn't going to go down well with someone so health conscious. What on earth someone so health conscious sees in a spazzed out pothead who semi permanently stinks of muscle rub I don't know, but he seems to and even brought chocolate. He's even texted today to send his compliments to the 10 year old chef.
Obviously this is doomed as he's far too nice.
Back to pain clinic. I've sort of, kind of got a plan. A plan that exists of more than an all out free fall panic. My appointment is with a doctor who I've seen previously. Before I was diagnosed with EDS and was a mentally nuts attention seeker. I'm anxious about the whole affair. There's so much pressure on doctors to be able to 'do something' in this kind of situation that it often results in that frustration being taken out on the patient. I've learnt to avoid that by making it very clear I have no expectations of miracle cures or even answers, just working to find a way forward, but the whole pre diagnosis thing is making me fret. Big time. These days I don't actually have to see any of the doctors who so judged me, which is fortunate as I had to in the early post diagnosis days and it was always an unmitigated disaster. This particular consultant certainly never labelled me as attention seeking nor treated me with anything other than courtesy, but still, it's probably not going to be the easiest situation for either of us.
Back to the plan. It's to keep reducing the Oxycontin in 10mg increments every 2-3 weeks. I need to find out if Oxycontin comes in 5mg doses as the final jump will be too difficult otherwise, and if not to try some Oxynorm (the immediate rather than controlled release kind of oxycodone) I also need to get something, not a controlled drug to try and limit the pain as I come off Oxycontin altogether. At the moment I'm leaning towards some form of codeine, and will have to wait and see if I can tolerate it without being a total space cadet.
Actually, I'll be happy just to get through the appointment without anyone getting upset about anything. Low expectations are the way to go!