Tell Me Lies, Tell Me Sweet Little Lies #esa #wrb #nogobritain

It all sounded such a positive idea; reform Incapacity Benefit by introducing Employment Support Allowance to ensure those who are too sick or disabled to ever work receive life long financial support, those who could do some work with the right support get that support, and those who've been 'gaming' the system get kicked off the benefit. What's not to like about that? Those in need of protection get it, those in need of support to work receive it and the 'drains on society' drain jobseekers allowance instead of sickness benefit so hard working tax payers can rest easy knowing their money is going to the right place. It's such a lovely idea that its impossible to argue against. It's why welfare campaigners have had such an uphill struggle to explain to the public that the "I don't mean people like you" they always exclude from benefit scrounging justifications are actually almost all "people like me" and not the amorphous drain on society type that everyone knows exists...until you actually ask them to name just one person they know and head scratching ensues.

Support for the genuinely sick or disabled is so entrenched in British thinking that it doesn't get questioned until people are in that position themselves and discover that at the time they are most vulnerable those nice little bungalows and free cars they thought would be there to enablee the practicalities of life never really existed. It's why slashing welfare can be done on the premise that it won't affect 'people like me', because until you don't know any better you'd assume people like me are getting all they need to support their ill health or disability.

We've had 18 years of laws the government insist make Britain accessible to disabled people, laws now being used to justify removing financial benefits designed to help us pay for those access needs. Laws which have seen great progress but that are so poorly enforced that a Baroness found herself needing to crawl off a train dragging her wheelchair and a famous yachtsman told he could not travel on a train because "those things will damage the floors".

Against that background of promises to always protect the most vulnerable its proved impossible to explain to the public that the welfare cuts are disproportionately falling upon sick and disabled people. Impossible to demonstrate that this was in fact a giant exercise in simply redefining what to be sick or disabled means, whilst the media floundered around struggling to understand the different names of benefits, what they are for, let alone what losing that support might mean. As campaigners, we always knew what that would mean was being unable to alert the public to the long term human consequences of this until after the changes became law and enough time had passed to collect evidence of what happens to people.

That evidence is still at best patchy, and will gradually emerge over the next 18 months as the tribunal service struggle to process soaring number of appeals against denial of benefit. It will continue to be obscured by the confusion between responsibility caused by outsourcing the medical testing part of the system to a private company not known for their competency, leaving the final decision with an administrative employee of the Department of Work and Pensions and the appeals process by another arm of the civil service. A private company who have failed to provide adequate access to examination centres, failed to inject any humanity into their working processes, frequently failed to acheive the required standards for those working processes but been astonishingly successful in obscuring the true heart of this problem, the deliberate redefinition of sickness and disability designed by the Department of Work and Pensions.

Because, really that's the key to this issue. And slowly, but surely now the evidence will start to emerge that these cuts are very much targeted upon 'people like me', people like the mum with a fractured spine who's lost her adapted mobility car, the mum who used to be a nurse, but now recovering from breast cancer complicated by severe osteoporosis declared fit for work, or the 1100 people who died last year after being found fit for some work and put in the Work Related Activity Group. That's the same group of people now receiving letters to inform them the benefit they believed they'd paid for all their working lives is now being time limited retrospectively if their partner earns more than £7500 a year. These ARE people like me, and when life brings the events we all most instinctively fear they will also be people like you.

So as the government continue to tell their sweet little lies, remember that one day "people like you" will become "people like me", the people you so wanted to believe were somehow so different from you they could be excised from conscience with clever words and promises to protect.

Channel 4's The #Undateables & Fascination F**ks

After a marketing campaign and hype which would have done a Victorian Freak show owner proud, the much debated The Undateables aired last night on Channel 4. Despite having been asked by various media outlets to comment I had decided to reserve judgement until after seeing the actual show itself* as I wondered whether it would reflect the marketing and PR.

The idea of making a show about disability and dating is a positive step forward as so many people consider disabled people to be asexual. I vaguely recall getting some of the emails when the show was looking for people to participate and harumphing to myself about being perfectly dateable thank you very much. Even if I do have a bad habit of throwing up on my dates. So, the title of the show, even with it's cutesy twee little 'un' falling off to reveal The Dateables was very offputting. Several people I spoke to said they wouldn't even consider watching the show because of the marketing. Which was a shame, because if you ignored the marketing and the at times hideously patronising voice over the show itself was really good....though my perception may well have been altered by heroic amounts of oramorph and cannabis. If I'm honest though, after that combination most things look good. 

What really shone through the whole show was the innate charm and warmth of the disabled people it followed. I laughed til I almost choked when Richard started to help himself to his date's discarded dinner....but that's mostly because I have a many cringe worthy food/drink related dating moments myself. Like Luke, my condition is exacerbated by nerves...so on a first date I'm much more likely to do something stupid. Drooling a bright red smoothie down my front and onto the table was one early attempt to charm a man as was trying to be 'oh so sexy' eating lunch with another. Who very charmingly pretended he hadn't seen me miss my mouth completely with a fork full of food and smear it across my face. I've found this to be an extremely effective screening technique; if they aren't bothered by my at times toddler like eating, drinking and falling over behaviours then they're definitely worth getting to know. If unsure this selection criteria has worked then I find that failing to breathe and turning blue is also a particularly good way of sorting the good from the not so good blokes.

One other strong theme was how high the dating standards of all the disableds were...and how identical they were to anyone else's unreasonably high dating standards. Not good looking enough, no spark, too much wheelchair, all featured as issues. I thought it was particularly impressive of Penny to declare she wanted to try dating a 'not yet disabled' bloke, not so much because she wanted to date outside disability but because she was confident enough to admit to that on national TV. I perhaps over related to Penny as 5 foot remains an unreachable dream for me, but I also have a tendancy to gravitate towards tall men. Usually taller than 6 foot. Don't judge me, it's definitely some sort of weird genetic rebalancing instinct in action. And 'ability to carry me when needed' is quite high up on my list of essential man traits.

I'm particularly looking forward to next week's show as it features a very attractive young woman who happens to be a wheelchair user. As a wheelchair user with double D boobs I've long believed that the experience of both dating and disability is very different for those who's disability doesn't impact upon their appearance, once men** have in some way or another established the only question they ever really want to know the answer to "Can you have sex?" disability becomes more of a practical issue. It might be easy for my breasts to attract men, but its much less easy to get them to stick around when they realise I can out snooze a dormouse. We've had a saying amongst the hypermobile community for a while along the lines of "once you go bendy you won't go back" as its fair to say that one of the few places being able to wrap your legs around the back of your head is advantageous is in the bedroom. Even though its pretty much anatomically impossible to have sex in that kind of position the mere idea of it does something very positive to straight men.

So, I'm all excited to hear about 'fascination fucks' in next weeks show and witness the hilarious combination of behaviour which arises when men are doubly intimidated by breasts and disability. Bring it on!



*Note to self: Shag a TV producer, they must have access to all these advance copies
** Sorry, I only have straight man dating experiences

Radio 5 Live Discussion, Disability & Consumer Issues with Martin 'Money Saving Expert' Lewis, Peter White & Kaliya Franklin



With thanks to @latentexistence for providing the listen again segment

The Orwell Prize 2012 - Longlist




 I've been longlisted for the Orwell Prize (blogging) 2012. I'm sure there's some unwritten protocol to be all super cool about not being excited about it but as I'm not very cool I didn't get that memo and have been squee'ing with excitement all afternoon. In between swigging from the Oramorph bottle which might've contributed a fair bit in its own right to the squeeing now I think about it. Behaviour which, I hope, Orwell would've been proud of!

 

Blogs entered:


What's in a word? 

Welfare bill ignores reality of disability

Sitting targets for the government's welfare reforms 

 Robin on the road - life can change in an instant

The Broken of Britain - Six months on the road to justice

Govt's welfare reform bill trick stinks of injustice

Imagine you're four... 

Its no wonder politicians are ignorant about the trials facing the disabled traveller

Disability benefit reform: is the government hiding behind Atos errors?

Get out of your comfort zone, disability living allowance cuts are relevant to all

 


 

 

 

 


 

 



Disability News Round Up By John Pring - Week Ending 14/03/2012


·         Disabled activists have reacted with astonishment after the government claimed in a new action plan that its sweeping welfare reforms and cuts to disability benefits would help in the fight against disability hate crime.
·         Fresh concerns have been raised about the government’s work capability tests after new figures showed a huge increase in the number of disabled claimants of incapacity benefit being reassessed as “fit for work”.
·         Concerns have been raised about the Metropolitan police’s reluctance to seek advice from its disabled advisers, following a high court case which led to a teenager with autism winning nearly £30,000 in damages.
·         London’s mayor could be breaching his Equality Act duties by refusing to trial an accessible version of his cycle hire scheme, it has been claimed.
·         A user-led advice service that has lost its council funding fears similar cuts could have serious financial consequences for disabled people in other parts of the country.
·         The government has refused to say whether it will withdraw funding for sheltered businesses across the country, following last week’s decision to force the closure of at least two-thirds of the remaining 54 Remploy factories.
·         A disabled MP has backed the government’s decision to withdraw funding from the remaining sheltered factories run by Remploy.
·         Disabled activists have again been forced to warn of the “catastrophic” consequences of a weakening in the laws on euthanasia and assisted suicide, after the latest “right to die” high court ruling.
·         A disabled peer has spearheaded the latest defeat of the government over its plans to reform the legal aid system and cut £350 million from its budget.

For links to the full stories, please visit Disability News Service