Our Future - Why Voting Matters

Earlier this week the report 'Our Future' compiled by United Response's campaign panel, made up of people with learning disabilities and their families was published. I was honoured to be asked to write the afterword by United Response, which is reproduced below. Watching the coverage of the American presidential election I'd noted the Obama campaign worked on some basic key principles, getting people out to use their vote, often using social media in a way our British politicians have never quite got to grips with. People with learning disabilities are probably the most disadvantaged and least likely to vote in our political systems, which allows their needs and priorities to be ignored by politicians who concentrate on polls, focus groups and which particular group of people might vote for their particular policies. Many people just assume that those with learning disabilities cannot vote, but this is absolutely not the case, legally anyone deemed to have capacity can vote, and with appropriate information and support many people with learning disabilities would want to do so. Whilst its important that politicians understand the power and volume of the disability vote, its unlikely they will ever do so if we as disabled people do not lead the way and demonstrate our engagement and ability to vote.



"After many positive recommendations on social care in the Dilnot Report it is disheartening for
disabled people to hear the Chancellor George Osborne suggesting its implementation will be
delayed due to the economic crisis. Disabled people living independent lives and being fully consulted
on policy making is central to making rights a reality, and the fears that disabled people have about
not being heard are central to both this latest report from United Response and our futures.

Very few people with a learning disability use their ability
to influence politics by using their right to vote; this can
be due to inaccessible processes, a lack of understandable
political information and a fear of influencing the
individual’s choice of vote by those supporting disabled
people. These barriers must be overcome so that all
disabled people can exercise their right to participate
in the democratic process in an accessible manner.

Easy Read information about politics is vital and
something simple that charities and disabled people
can campaign to have provided by every political party.
Easy Read information is not just of benefit to disabled
people, but really important for politicians; if politicians
cannot translate their language into that of Easy
Read then they probably do not understand what
they are saying very well.
Ensuring that accessible
information is provided by every political party is also a
good way of addressing concerns about bias; that way
support workers can provide detail on all the options and
ensure people with learning disabilities can make their
own, fully informed choice when it is time to vote.

The most common complaint from disabled people in
relation to politics is that our voices are not being heard,
particularly the voices of those with learning disabilities.
Ensuring that people with learning disabilities are
supported to attend policy meetings, select committees
and party conferences to speak directly for themselves is
also another simple idea which would have a powerful
impact on policy makers by making impersonal policy
plans come to life through the lived experience of those
the policies are designed for. It would also show politicians
that people with learning disabilities are as important a
group as ‘netmums’ or ‘white van man’ to be considered
when thinking about how voters will respond.

Disability is at the heart of all our lives as individuals
or as society,
whether it comes to us at the beginning,
middle or towards the end of life, in some way shape
and form we will all become reliant on the support
of others. The right to live independent and fully
participating lives benefits us all, but until disabled
people’s voices are heard at every level of politics and
policy making, we will not feel the positive influence
disabled people have on every area of all our lives.
"

United Response: People with learning disabilities speak out on Government plans for social care in new report

In a new report published today (5th November) people with learning disabilities give their opinion on the Government’s plans for social care and discuss how their lives will be affected by the proposals.

Produced by the national disability charity, United Response, ‘Our Future’, looks at Government plans published in the recent White Paper and Draft Care and Support Bill from the perspective of United Response’s Campaigns Panel, a group of service users with learning disabilities and their relatives, surveyed and interviewed by the charity.

With the Government currently considering the responses it received during the public consultation on its proposals, ‘Our Future’ is a timely report. It reveals that while service users and their relatives feel that some of the proposed reforms would make a really positive difference, almost all are concerned about current levels of funding for care; what is going to happen to their benefits; and how their support will be affected as a result. Free care for disabled people, as well as better access to support for those with mild and moderate needs and those with multiple disabilities were all regarded by the panel as crucial to providing people with the support that they need.

Speaking about free care, one member of the Campaigns Panel, Shairaz, said:

"Some people will need support for the rest of their lives and you can't expect them to pay for it. Disabled people shouldn't have to pay for it. We have to accept our disability and the Government has to accept it too."

He also felt that many people have unseen needs, which are not being met.

“I think that people with learning disabilities and mental health needs don’t get enough support. You need to look beyond physical appearances. People can be like apples or eggs – they look fine on the surface, but you don’t know what’s going on underneath.”

For Vicky, a second member of the panel, access to care for those with mild and moderate needs is a matter of equality.

“It is important to talk to people with mild and moderate needs and their relatives to ask what they think and what the person with a disability needs.  This would also help more people to understand them better and to be treated equally.”

Alongside the impact of Government’s proposals, ‘Our Future’ also looks at whether disabled people and their families are being kept informed of changes that could affect them and the care they receive. With only one third of the panel being able to name in detail any of the proposals, prior to taking part in ‘Our Future’, the report highlights the ongoing need for information to be made more accessible.

The report, which includes an afterword from disability campaigner, Kaliya Franklin, concludes by calling on all politicians to make a commitment to social care and disabled people by:

Ensuring that there is enough funding to make care and support work.
Listening to the views of disabled people and involving them in future decisions.

Speaking about ‘Our Future’, United Response chief executive, Su Sayer, said:

“The social care system in this country is in urgent need of reform. At the moment too many disabled people are not receiving the support they need and even those that are remain concerned that their support could be reduced.

“The White Paper and draft legislation present us with an opportunity to offer disabled people a much more secure future, but this can only happen if the system is properly funded and people with disabilities are fully involved in the process.

“Disabled people deserve to have the care and support that they need and which works. We must not let them or future generations down by missing this opportunity to fix a system which is severely overstretched.”

‘Our Future’ is available in a joint text and Easy Read format. To download a copy of the report, go towww.unitedresponse.org.uk/OurFuture


Ends

For further information, including an embargoed copy of the report, please contact Sarah Bartlett or Jaime Gill in the United Response Press Office on 020 8246 5237or 0208 246 5122 or emailsarah.bartlett@unitedresponse.org.uk or jaime.gill@unitedresponse.org.uk

Notes to editors:

1. United Response’s Campaign Panel was set up last year and is a group of service users with learning disabilities and their relatives who want to speak out about issues which affect disabled people. Using an accessible survey and face-to-face interviews, United Response asked the panel for their thoughts on the Government’s White Paper and Draft Care and Support Bill. These have been published in the ‘Our Future’ report.

2. United Response is community based, working in many localities across England and Wales. We are a top 100 national charity with a turnover of over £60 million, employing more than 2,500 staff and working with around 2,000 people at any one time.

We provide everything from 24 hour care to a few hours of support a week. Our support is always designed around each person because we know one size does not fit all. Some people may require minimal support; those with complex needs may require considerably more.

We plough our resources back into ensuring the quality of the support we provide, particularly in training, and have been shortlisted for ten major awards in three years, winning a National Training Award. We are pioneers in the areas of communications and inclusion, with particular expertise in communicating in a simple and accessible way. We have worked with the Government and many major financial services organisations on making politics and financial information understandable for people with learning disabilities.

To find out more about United Response’s work go to www.unitedresponse.org.uk



Sarah Bartlett

Press Manager

United Response

Vantage House, 1 Weir Road,

London SW19 8UX



Direct line: 0208 246 5237

Email:sarah.bartlett@unitedresponse.org.uk

United Response is a national charity supporting adults with learning disabilities, mental health needs and physical disabilities.

To find out more, visit our website: http://www.unitedresponse.org.uk

Or follow us on twitter: http://twitter.com/unitedresponse

Articles Elsewhere

Disability Now write up on attending Conservative Conference and interview with BBC Ouch about technology and fluctuating work

Updated with (hopefully!) working link 

Bedding In - Created and Performed By Liz Crow

Bedding In
 
Created and performed by Liz Crow
As part of SPILL Festival of Performance
Live durational performance, 2012
Running time three days
1 – 3 November 11am – 6pm
 
Exhibited beyond a red rope barrier, a woman lies in her bed.
 
Bedding In emerges from the current welfare benefits overhaul, which threatens many with poverty and with a propagandist campaign that has seen disability hate crime leap by 50%.
 
Says artist-activist Liz Crow, “I wear a public self that is energetic, dynamic and happening. I am also ill and spend much of life in bed. The private self is neither beautiful nor grownup, it does not win friends or accolades, and I conceal it carefully.
 
“But for me, along with thousands more, the new system of benefits demands a reversal: my public self implies I don’t need support and must be denied, whilst my private self must be paraded as justification for the state’s support.
 
“For some months, I have lain low for fear of being penalised, but the performer is beginning to re-emerge; instead of letting fear determine who I am, I’d rather stare it in the face.”
 
“Bedding In is a performance in which I take my private self and make it public, something I have not done in over 30 years. It feels dangerous exposed exciting. In a gallery, over a period of three days, I will perform the other side of my fractured self, my bed-life. Since the public me is so carefully constructed, this will be a kind of un-performing of my self.
 
“I want to make a twilight existence visible. But more, I want to show that what many people see as contradiction, what they call fraud, is only the complexity of real life. This is not a work of tragedy, but of in/visibility and complication; a chance to perform my self without façade.
 
Each day, members of the public will be invited to Bedside Conversations, gathering round the bed or perching upon it to talk about the work, its backdrop, its politics.
 
Bedding In is at Ipswich Art School Gallery
1 Upper High Street, Ipswich, Suffolk IP1 3NE
01473 216 545 / info@spillfestival.com
 
Bedside Conversations each day (40 mins): Thu 11.30am, Fri 2pm, Sat 4pm
BSL interpreter for Saturday Conversation
Limited capacity for Bedside Conversations. Sign up on the day at SPILL Central.

Wheelchair accessible venue
Free entry
 
@RGPLizCrow / #BeddingIn
 
Bedding In has been commissioned as part of Disability Arts Online’s Diverse Perspectives project (www.disabilityartsonline.org.uk) which is commissioning eight disabled artists across the UK to make a new artwork. Working closely with host organisations, artists will produce work that sparks conversations and debate about the Creative Case for Diversity.


--
New project 'Bedding In' at SPILL Festival of Performance
1 – 3 Nov 11-6, Ipswich Art School
--
Liz Crow
Roaring Girl Productions
1c Birchall Road, Bristol BS6 7TW UK
+44 (0) 117 944 6882
@RGPLizCrow

John Pring's Disability News Round Up 26/10/2012



  • Labour has called for an “immediate investigation” after evidence emerged that Atos Healthcare won two lucrative disability assessment contracts by using “misleading” information about its links with disabled people’s organisations.
  • The launch of a government review has raised fears that ministers are planning to replace their advisory network of disabled people with a controversial new “alliance” of disabled people’s organisations, charities, service-providers and private sector organisations.
  • Hundreds of campaigners have warned the Ministry of Justice that returning a seriously-ill disabled man to prison is likely to prove to be a “death sentence” for him.
  • A new report is the first to demonstrate the likely devastating impact on disabled people’s lives of the government’s cuts to disability benefits, say campaigners.
  • Police figures showing that some forces recorded just four disability hate crimes last year are “incredible” and “not believable”, according to the chair of the equality watchdog’s disability committee.
  • The number of working-age disabled people who received support from their local council dropped sharply last year, while the number admitted to care homes increased, according to a new report.
  • Union bosses have refused to say whether they sanctioned a private security company’s efforts to halt an anti-austerity protest by disabled activists.
  • Disabled activists who have again brought central London traffic to a standstill have called for a general strike to highlight anger at government cuts to disability benefits and services.
  • Disabled people who took part in a major anti-austerity march through London have described why they wanted to make their voices heard as they protested against the government’s cuts.

News provided by John Pring at www.disabilitynewsservice.com