Freak clinic went well. Dr FC said how pleased he was with my mobility and commented on how much physio I must have been doing to have gained this kind of control. Especially as he feels (as do I) that it is highly unlikely I'll ever be able to keep my hips from dislocating with each step. It works a bit like a sublux or partial dislocation as I weight bear, in that my femur returns to the socket on it's own, but is a more full dislocation in the distance the femur pulls out of the socket each step. With the strange sensations I've been experiencing recently along with some increase in palpitations Dr FC wants me to have a 24hr ECG, but said he thinks I am right in my theory that the sensations are caused by spinal instability and the palpitations etc I'm experiencing are because the heart is a muscle and affected by the defect in my collagen in the same way my other muscles are.
Dr FC also wanted to run some blood tests. There is a very good reason that the medical profession don't like the government plans for things like polyclinics, and yesterday's appointment was a perfect example of why continuity of care is so important in medicine, and in ways that politicians just don't seem able to understand. I first met Dr FC when I was newly diagnosed with Ehlers Danlos Syndrome. Since then he has been able to get an overview of my changing condition, been able to build a picture of how much my body shape has altered, the symptoms which accompany it, and because he knows me, he also knows I can and do dislocate my thyroid gland regularly. That's the kind of insight it's impossible to get when you only meet a patient once, and the kind which gives doctors the ability to judge when further tests are or are not needed. It's what will be completely destroyed if polyclinics are pushed for, and ultimately I believe will only cost more taxpayers money as patients will return for multiple visits with different 'health care professionals' whilst they try to get to the bottom of a clinical picture of which no-one is able to take overall charge.
I went to get blood drawn after my appointment. Now, every woman likes to be given compliments. It's like, in our genes or something. Next to the 'light blue touch paper and stand well back' strand of DNA I should think. There's a time and a place though. So to the phlebotomist who told me he'd never forget a face like mine, then looked directly at my breasts, laughed and said he'd never forget parts which looked like that either I'd like to say whilst it's lovely to be appreciated, I'd prefer you didn't do so whilst your colleague is sticking a needle into my arm. Thanks all the same.
Once I was home the BYM (long overdue for a name change so from this point on known as Roland) popped round for a cuppa. He was in a car accident a few days ago where someone skipped a red light and smashed into the side of him. He's very lucky as the car is a write off, and he went to A&E on a spinal board, but fortunately is just very stiff and sore now with nothing broken. As he left, Jenn turned up and we sat and chatted for a couple of hours.
By the time Jenn had gone and I'd managed to get
We then returned to mine to ask google whether women really poo themselves in childbirth, discuss my teenaged theory that having sex was no different from using a tampon and the 'slug' Fruitrock found on her leg and showed her mother in utter horror. During that conversation the knowledge that there was no slug seemed to distress Fruitrock greatly. Her slug theory being way better than my tampon sex one....vaginal mucus anyone?!