e? 
int, I'm not agreeing with the WRA or proposing it will do anything other than cost the taxpayer more money. I am however suddenly able to see why MP's think only the most severely disabled should be exempt from the workplace. Accessible facilities of such a high standard would lead to the false impression that these standards are the norm and therefore leave MP's unable to see what many disabled people's barriers to work are.
ike Veronica may well have issues relating to her hypermobility.
le with that the kind of extreme images shown here which are typical examples of those shown to students and the philosophy of "If you hear hoofbeats think horses not zebras" and the problem becomes quite clear.
e rare condition doctors are taught to believe it is.
vast majority of people with EDS.
(Disability Discrimination Act)
the disabled population feels the same way.
eople with disabilities tend to have more falls than the wider population. I'd hazard a guess and say that is particularly likely to happen in conditions where the access is less than perfect. So it does help if the cord to summon assistance is easily reachable from the floor rather than say being looped around one of the grab bars as in both these examples.If there is one phrase guaranteed to make me laugh, even if only inwardly, it is “I don’t know how you do it”. I always laugh because, really, what choice is there? Not coping is a luxury that just doesn’t apply to disability. It’s a bit like running away, no matter how fast or far you go, you always take your problems with you.
Happiness is being able to find pleasure in the things around you, the hidden secret of the disabled world of course is that we have the luxury of time to take that pleasure. Being positive though is something different, and sometimes that can feel impossible.
Its all too easy to feel overwhelmed when dealing with multiple stressful situations, and as everyone will know, when that happens it becomes very difficult to keep away the normal niggles of self doubt. In my case that is feelings of inadequacy. Unemployment is well known for helping people to lose their sense of self worth and no matter how well much I believe that what someone does is no measure of who they are, in relation to myself, I can’t help but feel that it is.
I’ve never been bitter because I’ve worked hard to make sure I didn’t become so, but at times like now I find it so difficult not to be angry. I don’t mind having Ehlers Danlos Syndrome, I don’t see it as a why me, more why not me? I do mind what I was put through before I was diagnosed, and particularly how it’s impacted my life.
I’m now at that age where people have established their careers, and suddenly everyone seems to be having children. It doesn’t help that I come from an area, and particularly a family keen to link worth with status. It isn’t that I begrudge anyone what they have, but when I feel this way I begrudge the opportunities taken away from me.
I feel very vulnerable and very alone, not because of anything my friends have or haven’t done, but because ultimately, as we all are, I am on my own in this. And it’s a lonely place to be.
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